Online Lessons in Dementia Management – NYTimes.com

Dr. Gitlin is an expert on “person-centered” care for people with Alzheimer’s disease and the originator of a massive open online course (M.O.O.C.) on this condition, which will be offered through Coursera for five weeks starting in mid-October. You can sign up now.

via Online Lessons in Dementia Management – NYTimes.com.

JMIR–A Mobile and Ubiquitous Approach for Supporting Frailty Assessment in Elderly People | Fontecha | Journal of Medical Internet Research

The problem of creating a general frailty index is still unsolved. However, in recent years, there has been an increase in the amount of research on this subject. Our studies took advantage of mobile device features (accelerometer sensors, wireless communication capabilities, and processing capacities among others) to develop a new method that achieves an objective assessment of frailty based on similarity results for an elderly population, providing an essential support for physicians.

via JMIR–A Mobile and Ubiquitous Approach for Supporting Frailty Assessment in Elderly People | Fontecha | Journal of Medical Internet Research.

Vital Talk iPhone App | Abstract

Vital Talk iPhone App | Abstract.

App designed to foster interaction between adults with dementia, caregivers

A new iPad app uses art to encourage conversations between seniors with early to mid-stage dementia and their family and friends.

via App designed to foster interaction between adults with dementia, caregivers.

Medical Futility Blog: New $2.5 Million Centre for Research Excellence in End of Life Care

Professors Lindy Willmott, Ben White, and Fiona McDonald at the Queensland University of Technology are part of a team of ten researchers who have just secured $2.5 million in funding to establish a Center for Research Excellence in End of Life Care.

via Medical Futility Blog: New $2.5 Million Centre for Research Excellence in End of Life Care.

JAMA Network | JAMA | The HIPAA Conundrum in the Era of Mobile Health and Communications

Navigating these new mandates may pose administrative and technical challenges for covered entities and for business associates. The Department of Health and Human Services has estimated that the cost of implementation ranges from $114 million to $225 million in the first year and approximately $14.5 million each year thereafter.1 Many companies, however, maintain that the amount reported by the Department of Health and Human Services significantly underestimates the actual compliance costs.4 This conundrum is particularly true for mobile health companies in a rapidly expanding HIT industry.

via JAMA Network | JAMA | The HIPAA Conundrum in the Era of Mobile Health and Communications.

Novel open-source electronic medical records system for palliative care in low-resource settings – Springer

DataPall is a simple, effective electronic medical records system that can assist in developing an evidence base of clinical data for palliative care in low resource settings. The system is available at no cost, is specifically designed to chronicle care in the region, and is catered to meet the technical needs and user specifications of such facilities.

via Novel open-source electronic medical records system for palliative care in low-resource settings – Springer.

A Novel Website to Prepare Diverse Older Adults for Decision Making and Advance Care Planning: A Pilot Study

A new, patient-centered ACP website that focuses on preparing patients for communication and decision making significantly improves engagement in the process of ACP and behavior change. A clinical trial of PREPARE is currently underway.

via A Novel Website to Prepare Diverse Older Adults for Decision Making and Advance Care Planning: A Pilot Study.

Events – London

‘Death, Digital Demise, Community & Digital Legacy’ is an event aiming to explore society’s changing attitudes and behavior in relation to ‘end of life’ and mourning. It will be examined from the context of todays’ connected world from a number of differing perspectives. The event will feature as part of ‘Social Media Week London’ (SMWLDN).  This year’s SMWLDN’s theme is: ‘Open & Connected reflecting on the global impact of social media and its role as a catalyst in driving cultural, political, economic and social change’.

via Events – London.

App will be ‘virtual coach’ for LTC caregivers

Researchers at the Case Western Reserve University (CWRU) nursing and engineering schools in Cleveland, aided by a $460,000 grant from the National Institute of Nursing Research, are developing the Electronic Surrogate Decision Maker Resources and Tailored Training (eSMARTT) app to help caregivers learn about available resources and medical care so they can practice and improve on making necessary choices for those undergoing rehabilitation or planning to live in a skilled nursing facility.

via App will be ‘virtual coach’ for LTC caregivers.