Published by the Gerontological Society of America in 2012, this guide to communication provides practical tips based on evidence-based literature including general tips, face to face communication, optimizing interaction, and communicating with older adults with dementia.
September 2013 marks the second annual World Alzheimer’s Month and in honour of the occasion, this week’s web pick is the COPSA Education Channel featuring 3 videos on Alzheimer’s and Dementia care in long-term care homes. The COPSA Institute for Alzheimer’s Disease and Related Disorders is a university-based program that provides a daily care program for older adults with dementia and other related disorders. The Centre has produced the following 3 video that are available to view online:
Two new resource lists provide details of online education resources for those working in palliative care in Ireland and internationally.
A number of caregivers who have left comments or emailed me have asked for my advice on dealing with their loved ones’ dementia. Since I have absolutely no personal experience in that area, I can only offer second-hand advice that I can’t personally vouch for. In two previous posts (here and here), however, I did review the book Contented Dementia, which offers a good general framework for thinking about the issue. I’ve also recently come across a set of “Tips for the Caregiver” from the Bureau of Geriatric Psychiatry in Tuscaloosa, AL. The tips are taken from a larger “Caregiver Packet”* which is also well worth reading.
A colleague writes: I am looking to facilitate a support group for women whose mothers have died. I have a list of books and movies related to this subject, but it seems a little outdated. I was wondering if you had something a little more up-to-date or if you could give me a few books to pass along to the women who are attending the group.
A list of children’s books designed to promote conversation about dementia.
End of life Care for all (or e-ELCA) is an online learning module created by the National End of Life Care Programme of Great Britain and Ireland. This e-learning course is available to the public and has 5 different modules (Introduction; advance care planning; assessment; communication skills and symptom management). Each session takes approximately 20 minutes to complete.
The report, Who Cares? Support for carers of people approaching the end of life, by the National Council of Palliative Care (NCPC) highlights the need for greater partnerships between caregivers and end of life professionals. It also discusses the different needs of caregivers that are not being currently met. The report is based on a recent conference by NCPC on caregivers.
A new, patient-centered ACP website that focuses on preparing patients for communication and decision making significantly improves engagement in the process of ACP and behavior change. A clinical trial of PREPARE is currently underway.