The Bereavement Counselor: Public Misperception ~ Pallimed: A Hospice and Palliative Medicine Blog

We are often asked, How can you do that? How can you stand to do that work? Such a dreary subject. Grim but supposedly necessary. Don’t you get depressed with all the talk of dying?

via The Bereavement Counselor: Public Misperception ~ Pallimed: A Hospice and Palliative Medicine Blog.

A time-sovereignty approach to understanding carers of cancer patients’ experiences and support preferences – Olson – 2013 – European Journal of Cancer Care – Wiley Online Library

A time-sovereignty framework offers health and support professionals a means of understanding carers’ varying needs and tailoring support services.

via A time-sovereignty approach to understanding carers of cancer patients’ experiences and support preferences – Olson – 2013 – European Journal of Cancer Care – Wiley Online Library.

Risk factors among people surviving out-of-hospital cardiac arrest and their thoughts about what lifestyle means to them: a mixed methods study – Springer

For many people out-of-hospital cardiac arrest was the first symptom of coronary heart disease. Interview participants were well informed about their cardiovascular risk factors and the benefits of risk factor treatment. In spite of that, some chose to ignore this knowledge to some extent and preferred to live a “good life”, where risk factor treatment played a minor part. The importance of the support of family members in terms of feeling happy and having fun was highlighted by the interview participants and expressed as being the meaning of lifestyle. Perhaps the person with illness together with health care workers should focus more on the meaningful and joyful things in life and try to adopt healthy behaviours linked to these things.

via Risk factors among people surviving out-of-hospital cardiac arrest and their thoughts about what lifestyle means to them: a mixed methods study – Springer.

Access : |[lsquo]|Being there|[rsquo]| for women with metastatic breast cancer: a pan-European patient survey : British Journal of Cancer

These findings show a continuing need to provide women with advanced breast cancer with better information and emphasise the importance that these patients often place on prolonging survival.

via Access : |[lsquo]|Being there|[rsquo]| for women with metastatic breast cancer: a pan-European patient survey : British Journal of Cancer.

Discussing Physician-Assisted Dying: Physicians’ Experiences in the United States and the Netherlands

Discussion of PAD is an energy-consuming, yet potentially enriching part of the doctor–patient relationship. Legal guidelines may help to provide structure and support for physicians when patients broach the topic of PAD.

via Discussing Physician-Assisted Dying: Physicians’ Experiences in the United States and the Netherlands.

Health care experiences of people with dementia and their caregivers: a meta-ethnographic analysis of qualitative studies

Interpretation: The health care experience of people with dementia and their caregivers is a complex and dynamic process, which could be improved for many people. Understanding these experiences provides insight into potential gaps in existing health services. Modifying existing services or implementing new models of care to address these gaps may lead to improved outcomes for people with dementia and their caregivers.

via Health care experiences of people with dementia and their caregivers: a meta-ethnographic analysis of qualitative studies.

Quality of life in fatal disease: the flawed judgement of the social environment – Online First – Springer

Our data suggest that caregivers and the general public significantly underestimate the QoL of ALS patients. A positive affective state can indeed be preserved in a progressive, fatal disease.

via Quality of life in fatal disease: the flawed judgement of the social environment – Online First – Springer.

Experience of palliative care for patients with head and neck cancer through the eyes of next of kin: Impact of an expert center – Offerman – Head & Neck – Wiley Online Library

Experience of palliative care for patients with head and neck cancer through the eyes of next of kin: Impact of an expert center – Offerman – Head & Neck – Wiley Online Library.

The experiences of palliative care health service provision for people with non-malignant respiratory disease and their caregivers: an all-Ireland study – Mc Veigh – 2013 – Journal of Advanced Nursing – Wiley Online Library

This research will explore the experiences of patients with Chronic Obstructive Pulmonary Disease, Interstitial Lung Disease and Bronchiectasis and their caregivers from the perspective of the bereaved caregiver. The outcomes of this study will provide a critical first step in the development of more responsive palliative care for this client group and have important implications for future practice and policy in the palliative care provided to this client group.

via The experiences of palliative care health service provision for people with non-malignant respiratory disease and their caregivers: an all-Ireland study – Mc Veigh – 2013 – Journal of Advanced Nursing – Wiley Online Library.

The Parental Cancer Questionnaire: scale structure, reliability, and validity – Online First – Springer

The PCQ has a clear three-component structure and demonstrates good reliability. The measure has excellent face, content, convergent, and discriminant validity, indicating a structure suitable for use in future research. The measure appears to be a useful measure of the experience of parental cancer for adult children.

via The Parental Cancer Questionnaire: scale structure, reliability, and validity – Online First – Springer.