Informed consent provisions strong in only 7 states, group says

Only seven states have strong informed consent provisions ensuring the rights of nursing home residents, according to a new analysis released by the Long Term Care Community Coalition (LTCCC).

via Informed consent provisions strong in only 7 states, group says.

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Patient-Centered Care and the Role of the Caregiver

ElderBranch interviewed Dr. Gillick to discuss her paper, The Critical Role of Caregivers in Achieving Patient-Centered Care.

via Patient-Centered Care and the Role of the Caregiver.

Dear Doctor: A tool to facilitate patient-centered communication – Farberg – 2013 – Journal of Hospital Medicine – Wiley Online Library

Utilizing a bedside notepad improved patients’ satisfaction with physician communication. A simple, low-cost, patient-centered tool such as the DD notes may enhance a patient’s overall experience with their providers and the hospital.

via Dear Doctor: A tool to facilitate patient-centered communication – Farberg – 2013 – Journal of Hospital Medicine – Wiley Online Library.

Patient-Reported Outcomes of Cirrhosis

Health care interventions are intended to increase longevity, prevent morbidity, and make patients feel better. The first 2 of these end points are relatively simple to measure. However, measuring how people are feeling is not as easy. Physiological or laboratory tests commonly are used for the direct measurement of the patients’ well-being, assuming that a strong link exists between the 2 parameters. However, when investigated empirically, the relation between physiological or clinical measures and patients’ symptoms and well being is, at best, modest and often highly variable.

via Patient-Reported Outcomes of Cirrhosis.

JAMA Network | JAMA | The Critical Role of Caregivers in Achieving Patient-Centered Care

Achieving high-quality, cost-effective medical care remains an elusive goal of the US health care system, but there is widespread agreement that patient-centered care will be a key ingredient.1 Yet for frail elders and patients with advanced illness, many of whom have multiple chronic diseases, patient-centered care is impossible without caregiver involvement.

via JAMA Network | JAMA | The Critical Role of Caregivers in Achieving Patient-Centered Care.

Research Amplifies Need for Patient-Centered Goals of Care Discussion | GeriPal – Geriatrics and Palliative Care Blog

How important is reducing the risk of one ailment if it increases the risk of another?

via Research Amplifies Need for Patient-Centered Goals of Care Discussion | GeriPal – Geriatrics and Palliative Care Blog.

Person-Centered Dementia Care and the Cultural Matrix of Othering

The observed cultural matrix of othering is the focus of this article and represents the cultural processes that prevented PCC from being enacted within Cedar Winds. The three main characteristics through which the residents were othered and PCC was obstructed were (a) dementia as a master status, (b) functional dependence, and (c) aggressiveness.

via Person-Centered Dementia Care and the Cultural Matrix of Othering.

British Journal of Cancer – Variation in reported experience of involvement in cancer treatment decision making: evidence from the National Cancer Patient Experience Survey

Efforts to improve involvement in treatment decision making can focus on those who report the worst experience, in particular younger patients, ethnic minorities and patients with rectal, ovarian, multiple myeloma and bladder cancer.

via British Journal of Cancer – Variation in reported experience of involvement in cancer treatment decision making: evidence from the National Cancer Patient Experience Survey.

Medication Management of Chronic Heart Failure in Older Adults – Online First – Springer

The objective of this article is to discuss evidence-based and outcomes-driven pharmacologic management strategies for chronic HF in the older adults for whom functional and other patient-centered outcomes might be more than or as important as clinical outcomes.

via Medication Management of Chronic Heart Failure in Older Adults – Online First – Springer.

Integrating cancer patients’ perspectives into treatment decisions and treatment evaluation using patient-reported outcomes – a concept paper – Huebner – 2013 – European Journal of Cancer Care – Wiley Online Library

The goal of our concept is to individualise QoL and to use validated instruments in order to integrate patients’ perspectives and aims into treatment assessment, planning and control. We propose to use the domains of the EORTC QLQ-C30 and to ask the patient to determine which objectives besides survival are relevant for him and should be achieved by treatment. These individual goals can be used in a process of shared decision-making to choose and monitor treatment. In clinical studies, this approach would allow to recruit more patients who would most probably benefit from the therapy. In addition, supportive data could be gathered in correlation to treatment goals and actual benefits.

via Integrating cancer patients’ perspectives into treatment decisions and treatment evaluation using patient-reported outcomes – a concept paper – Huebner – 2013 – European Journal of Cancer Care – Wiley Online Library.