A time-sovereignty approach to understanding carers of cancer patients’ experiences and support preferences – Olson – 2013 – European Journal of Cancer Care – Wiley Online Library

A time-sovereignty framework offers health and support professionals a means of understanding carers’ varying needs and tailoring support services.

via A time-sovereignty approach to understanding carers of cancer patients’ experiences and support preferences – Olson – 2013 – European Journal of Cancer Care – Wiley Online Library.

Advertisements

Busy Parents and Caregivers Must Care for Themselves

n a recent survey, 12 percent of website visitors to heart.org said that they were too busy taking care of others to take care of themselves. But, if you’re a busy mom or dad or the caregiver of a cardiac patient, caring for yourself is just as important as caring for your loved one(s).

via Busy Parents and Caregivers Must Care for Themselves.

Sleep Quality, Stress, Caregiver Burden, and Quality Of Life in Maternal Caregivers of Young Children With Bronchopulmonary Dysplasia

Sleep quality was found to be the most significant predictor of quality of life in maternal caregivers.

via Sleep Quality, Stress, Caregiver Burden, and Quality Of Life in Maternal Caregivers of Young Children With Bronchopulmonary Dysplasia.

Patient-Centered Care and the Role of the Caregiver

ElderBranch interviewed Dr. Gillick to discuss her paper, The Critical Role of Caregivers in Achieving Patient-Centered Care.

via Patient-Centered Care and the Role of the Caregiver.

Health care experiences of people with dementia and their caregivers: a meta-ethnographic analysis of qualitative studies

Interpretation: The health care experience of people with dementia and their caregivers is a complex and dynamic process, which could be improved for many people. Understanding these experiences provides insight into potential gaps in existing health services. Modifying existing services or implementing new models of care to address these gaps may lead to improved outcomes for people with dementia and their caregivers.

via Health care experiences of people with dementia and their caregivers: a meta-ethnographic analysis of qualitative studies.

The experiences of palliative care health service provision for people with non-malignant respiratory disease and their caregivers: an all-Ireland study – Mc Veigh – 2013 – Journal of Advanced Nursing – Wiley Online Library

This research will explore the experiences of patients with Chronic Obstructive Pulmonary Disease, Interstitial Lung Disease and Bronchiectasis and their caregivers from the perspective of the bereaved caregiver. The outcomes of this study will provide a critical first step in the development of more responsive palliative care for this client group and have important implications for future practice and policy in the palliative care provided to this client group.

via The experiences of palliative care health service provision for people with non-malignant respiratory disease and their caregivers: an all-Ireland study – Mc Veigh – 2013 – Journal of Advanced Nursing – Wiley Online Library.

The ability of informal primary caregivers to accurately report cancer patients’ difficulties – Libert – 2013 – Psycho-Oncology – Wiley Online Library

Family primary caregivers correctly reported approximately two thirds of physical and psychological patients’ difficulties; however, they had less accurate reports of patients’ social difficulties. Correct report rates increased the probability of false report rates. Healthcare professionals should carefully evaluate the accuracy of a primary informal caregiver’s report in regards to patient experiences. Copyright © 2013 John Wiley & Sons, Ltd.

via The ability of informal primary caregivers to accurately report cancer patients’ difficulties – Libert – 2013 – Psycho-Oncology – Wiley Online Library.

Info Long-Term Care: Communication and Mealtimes Toolkit

The Communication and Mealtimes Toolkit is a guide for caregivers and long-term care professionals on creating a person-centered care approach to communication and mealtime for persons with dementia.   The toolkit looks at issues that arise on a daily basis and gives straightforward and practical advice to caregivers wanting solutions to these common problems.

via Info Long-Term Care: Communication and Mealtimes Toolkit.

Subjective stressors moderate effectiveness of a multi-component, multi-site intervention on caregiver depression and burden – Hatch – 2013 – International Journal of Geriatric Psychiatry – Wiley Online Library

Results suggest greater intervention efficacy among caregivers experiencing subjective stress.

via Subjective stressors moderate effectiveness of a multi-component, multi-site intervention on caregiver depression and burden – Hatch – 2013 – International Journal of Geriatric Psychiatry – Wiley Online Library.

Massive Caregiver Shortage Expected in Coming Decades

While many seniors today rely on assistance from their adult children and other relatives, the number of potential caregivers in the US is expected to plummet in the next 20 years, just when the oldest Baby Boomers begin to reach their 80s.

The report, released Monday by the AARP Public Policy Institute, examined the ratio of potential caregivers to seniors aged 80 and older in order to calculate the availability of family caregivers during the upcoming decades. The authors defined “caregiver support ratio” as the number of potential caregivers aged 45–64 for each person aged 80 and older. According to the authors, about 14 percent of these potential caregivers currently provide care for someone 80 or older, 9 percent care for someone 60 to 79, and 7 percent care for someone 18 to 59.

via Massive Caregiver Shortage Expected in Coming Decades.